Tuesday, May 14, 2024

Bits and Pieces

Hello, fellow Americans (and any other nationalities, honestly... all are welcome)!

Yesterday was Mother's Day in the US, and my local family came out to my house to visit. We had a nice afternoon hanging out, and I didn't have to do anything because James and Mal picked out snacks, my Dad brought food and plates, and it was just a fun time all around.



Today, I had an early appointment at a radiology office, not realizing that I was getting some nuclear imaging and a CAT scan. Woo hoo. Fun times. Before going into the imaging chamber, I got an IV of radioactive material! About two short hours and I was done. What a psychic workout, though.

First, the radiologist was trying to keep my elbows in place (the camera automatically keeps 1 inch between itself and a body, and she didn't want me moving my arms and making the camera back off). It was kind of like swaddling, and it was comfy enough... until she started lowering the imaging plate to within 2 inches of my nose and my claustrophobia kicked in. I pulled off the sheet and promised that I would keep my elbows tucked under my own power. She offered to try something different and I told her that if I felt restrained, there was no way I could do it. So we kept my arms free and everything was relatively fine after that.

I had 3 different 5-minute scans, during which I could not move. I was kind of restless after those, but THEN it was time for a 25-minute scan! That one did a number on me, as I tried to relax and maybe even nap since I'd gotten less sleep than usual the night before. But my body kept bringing me back into the moment by suddenly detecting an itch in my right ear canal. Then making me hyper aware that the muscles in my leg were clinched and I needed to relax. Then noticing that my pinkies were falling asleep from my crossing my fingers, which was how I was keeping my elbows from flopping around, so I couldn't really move them but I also couldn't forget about how much I wanted to move. However, when the machine beeped that it was over, I'd thought we were only at the halfway point. 

After the long scan, I had to go into a CAT scan machine still without moving because it had to line up with the previous images. The tech had to "stitch" the pictures, and I was trying not to say anything until there was a natural break, but by then I REALLY needed another visit to the restroom (one of the symptoms of the hypercalcemia caused by hyperparathyroidism is that my kidneys are always trying to jettison calcium, thus pulling moisture from my body and causing me to need to evacuate a minimum of hourly). Fortunately, she was able to let me go before we did the 3 final 5-minute scans.

Shortly after I got home, James had deja vu from last spring, when Indeed announced that it was laying off 8% of its work force. This time, James didn't keep his job, and he said he's mostly numb about it, but I think it will end up being a good thing. Morale has tanked since last year's down-sizing (the first mass layoffs Indeed had ever done), and he hasn't been happy for a while. 

Classes and extra-curriculars are shutting down for the summer. Mal has been out of Wednesday classes for two weeks. This Wednesday, we're going to to to the splash pad where we had his birthday party. I'm probably going to plan an activity every Wednesday that I can, just to avoid general malaise (although I love being home). Since Mal is enjoying public transit so much (we took the bus to Urban Air last week and had a great time), I'll see what I can find that is nearby convenient stops (we had to walk almost a mile between the stop and UA, but it was fun).

Thursday is Mal's last homeschool open gym until fall. And our Tuesday group is always lighter in the summer, with people traveling and dealing with summer custody arrangements.

But Mal's looking forward to YMCA movie-making camp in about a month! It'll be his first sleep-away camp, and I hope it's as magical as Camp Coral (a SpongeBob series), which is why I think he was interested in camp in the first place.

This last thing I'm going to tell you about... well, if you're squeamish or just don't like TMI, then stop reading and we'll see you next post. 

If you're still here, allow me to say: I'M TOO OLD FOR THIS! And by "this," I mean continuing my fertility. I, too, had deja vu today. We were in Montreal exactly a year ago (sigh) and the last full day we were in town, I took Mal to an indoor playground. We spent a LOT of time on public transit to get there. On the bus ride, I felt a kind of "swoosh" feeling that was weird. When we got to the playground, I went into the restroom and there was blood EVERYWHERE. I was wearing a menstrual cup (which I've used without leaks since 2010), AND period underwear. And still, my khaki slacks were absolutely drenched in blood.

I had a stain stick and pretty much used it up. It kind of diluted the visible blood, though it definitely looked like I'd peed myself. Oh well. I wasn't going to end the day early and travel an hour back to the hotel room just to change. I moved my stuff from a cloth seat to a leather chair and just dealt with it. It was fine; I didn't make a mess anywhere but on myself. Then Mal and I went to McD's before heading back several hours later.

(It's the next day).

Since then, I've had one overnight situation which hadn't happened since I stopped wearing pads in my early 20s. I determined to remember to change out IMMEDIATELY before bedtime from then on, and have done so.

But yesterday, as I used the restroom prior to my eternal scan situation, I realized I'd started my period. I'd gotten up in the dark so hadn't seen any clues at home. But by the time I made it to the radiology clinic, I suppose I'd been free-bleeding for about two hours. I didn't have on my period underwear (my periods are extremely irregular -- thanks, perimenopause! -- and I didn't get the usual two-day warning of hormone-induced stress this time. 

I had my cup with me as always, but had to do the whole procedure knowing that I'd bled straight through my jeans. Ehh. Got home, changed, was fine the rest of the day.

Then last night, I got the same feeling as on the bus a year ago. Got up and there was just blood EVERYWHERE. I don't understand what or how it is happening, but I'm over it. Cleaned up, went for a walk, could tell I was leaking. Had to change and clean up AGAIN when I got home.

Friends, I am almost 52 years old! This nonsense needs to stop. At least I will probably be at least mostly finished by next week. I don't want to have to do the pad/mesh underpants combo I discussed with the surgical nurse.


Monday, May 6, 2024

Parathyroid Update

Can't believe it was more than three weeks ago when I wrote that last entry! Time flies...

Since I posted that, we had a visitor for a couple of weeks (D's friend), Mal's school finished up, and temperatures are letting us know that summer is on its way.

I also did go see both my endocrinologist as well as the endocrinology surgeon. The endocrinologist was very empathetic about my frustration and said that she has concerns about medical care in Austin. There are just more people than there are doctors to meet the need. She said, "I'm here every day..." and then told me to come back in 4 months, but then the first available appointment was in 6 months. She did add to my notes that I was frustrated with how long this process is taking.

Then a bit later, I went to see the surgeon. She asked to ultrasound my neck, and immediately asked, "Has anyone told you that you have Hashimoto's disease?" I told her that I had not gotten that diagnosis, and she said that just based on what my thyroid looks like, she's pretty sure that I have it. She did an u/s on herself and showed me what a "normal" thyroid gland looks like compared to mine (it all looks like TV static to me, but I trusted her), and then she sent me off with lab orders to check some thyroid antibodies that would support her hypothesis.

I did the bloodwork and have a final different kind of scan scheduled for a week from today. The bloodwork came back... well, I have Hashimoto's.

I feel SO lucky. I know people who have Hashimoto's, and they often suffered for YEARS before getting a diagnosis. As far as I know, I'm asymptomatic, though the surgeon said that it was possible that I'd been having slow-onset symptoms and they're just normalized.

She did mention that I might feel better after surgery when my calcium level is corrected, and I might not feel any different at all. But that you get parathyroid surgery for the long-run, to avoid bigger problems down the road. So even if I don't feel magically more energetic, with no GERD, etc. that it's still the right move to avoid kidney damage and further bone loss.

My surgery is in two weeks, and I'm excited to get it over with!

Meanwhile, life goes on pretty normally...